Living with Breathlessness, Learning from Experience

 
Discover the work our researchers are doing to try and understand what it is like to live with a lung condition. Sarah McLusky chats to Durham anthropologists Rebecca Oxley and Fredrik Nyman, as well as Darlington Breath Easy support group members, Gaynor Williams and James Edwards. They discuss why learning from people who experience breathlessness is integral to our work and how this deeper understanding might improve care and reduce stigma. 

The podcast also features Arthur Rose reading an extract from the poem ‘Phenomena’ by John Updike. You can find the whole poem in the collection ‘Selected Poems’ (2015) Penguin.

If you would like to share your experience of living with breathlessness with Rebecca or Fredrik please do get in touch.

Breathe Easy Darlington meets at 1pm on the first Tuesday of every month at the Copper Beech, Neasham Road, Darlington DL1 4DH. You can find details of other Breath Easy support groups via the British Lung Foundation website.

Recorded in April 2017 at Breath Easy Darlington and Durham University.

Presented and produced by Sarah McLusky.

The featured image was created by a pupil at Gurney Pease Primary School, as part of a competition on the theme of ‘Air’, which was organised by Darlington Breath Easy.

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